Wednesday, April 21, 2010

I never knew that I would stress about oxygen.

Today has been a rough day. Well, let's back up.

Izzy went to stay with her Noni and Papaw on Thursday night. They were going to keep her through Tuesday but Noni called me on Friday to let me know that Izzy had started to cough and had a runny nose.

Since it was just a dry cough and clear snot. Izzy stayed at Noni's but by Monday, Izzy was coughing a lot. So Noni brought her home early so we could see the doctor.

Izzy's visit with Dr. Kasper had some highs and some lows. First the high points, Izzy weighed 24 lbs 17 oz. This is up from about 23 lbs 7 oz on 03/20/2010. Izzy did not have any ear infections and she is not teething. Unfortunately, she is still coughing and running a low fever. The nurse came in to take Izzy's oxygen saturation and it was only 96%. Izzy has always ran at 99% or higher. Izzy is too little to start PFTs yet so oxygen saturation is a big clue for us on how her lungs are functioning and a 3% drop in less than a month is not something that we ever want to happen. If Izzy dropped below 94%, we would be discussing hospital stays. So luckily, she isn't that low. But we do need to get her mucus to thin out.

Here is the plan: We are increasing breathing treatments from twice a day to four times a day. That means we will be doing one at 6AM, 10AM, 6PM, and 10PM. We will run the meds completely through Izzy's mask before starting the vest. This means treatment times will go from 50 minutes to 70 minutes, because each med takes about 20 minutes to run through the nebulizer. Also, Izzy is going to take Augmentin for the next 10 days. We had a throat culture done and should hear back on it in the next week. If Izzy doesn't improve by 3 days from now, we will go in to check O2 levels again.

I hate days like this when CF just smacks me in the face.

But let's end on a good thought, Izzy told me to today that she is a very good mommy to her baby doll, Ame. She said, "Mommy, I'm a good mommy to my baby Ame. I am just like you." Which to me means she thinks I'm a good mommy!

Hope you all are having a good day!

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